Children and Youth with Special Health Care Needs (CYSHCN)

The Committee on Children and Youth with Special Health Care Needs (CYSHCN)

The MCAAP Children and Youth with Special Health Care Needs (CYSHCN) Committee is comprised of a group of pediatricians, family advocates, medical students, residents and representatives from the Massachusetts Department of Public Health.  The Committee was recently formed to address the needs of Massachusetts CYSHCN and their families in accessing quality care and access to a medical home.

Recently, the Committee has reviewed various grant-funded models of care and has lent input to help ensure optimal functioning of these models.  The Committee also lends input to the Maternal Child Health Bureau (MCHB) funded State Implementation Project (SIP) to improve the provision of medical homes for CYSHCN in Massachusetts. A major activity of this grant is to increase the use of Shared Plans of Care developed jointly by practitioners and families with children with special health care needs. The goal of the SIP is to increase the percentage of CYSHCN (from a target group) who have a Shared Plan of Care by 20% over a two-year period.  The Chapter has surveyed committee members and MCAAP members about their knowledge of Shared Plan of Care and their interest in participating in Shared Plan of Care pilot project.


In the fall of 2016, the committee finalized a mission and goals statement and  prioritized a set of 11 focused goals. Subcommittees with chairs have now been established for the top four.

The top four priorities are listed as follows:

  • Individualized education programs (IEPs) and translation services
  • Transportation for CYSHCN
  • Pediatric long-term nursing
  • Transitional care into adult services

If you are interested in joining this Committee, please contact Cathleen Haggerty at