Children and Youth with Special Health Care Needs (CYSHCN)

The Committee on Children and Youth with Special Health Care Needs (CYSHCN)

The MCAAP Children and Youth with Special Health Care Needs (CYSHCN) Committee is comprised of a group of pediatricians, family advocates, medical students, residents and representatives from the Massachusetts Department of Public Health.  The Committee was recently formed to address the needs of Massachusetts CYSHCN and their families in accessing quality care and access to a medical home.

Recently, the Committee has reviewed various grant-funded models of care and has lent input to help ensure optimal functioning of these models.  The Committee also lends input to the Maternal Child Health Bureau (MCHB) funded State Implementation Project (SIP) to improve the provision of medical homes for CYSHCN in Massachusetts. A major activity of this grant is to increase the use of Shared Plans of Care developed jointly by practitioners and families with children with special health care needs. The goal of the SIP is to increase the percentage of CYSHCN (from a target group) who have a Shared Plan of Care by 20% over a two-year period.  The Chapter has surveyed committee members and MCAAP members about their knowledge of Shared Plan of Care and their interest in participating in Shared Plan of Care pilot project.

In May 2015, the Chapter’s Annual CME Meeting focused entirely on CYSCHN topics.

The program was entitled: “Caring for Children and Youth with Special Health Care Needs:  How to Make it Work in the World of Health Care Reform”.  The program was very well attended and received.

If you are interested in joining this Committee, please contact Cathleen Haggerty at